NasalCrom

2025-May-25, Sunday 11:11 pm
mellowtigger: (the more you know)

I've been using NasalCrom for several months, and it's an amazing drug. I've had severe allergies my entire life, and I'm certain they played a part in the 2 sinus surgeries that I've already had, thanks to sinus polyps that my overactive sinuses eventually generate which leads to blocked airways and high fevers due to infection. The allergies and the associated sinus troubles are not a real concern any more, thanks to Nasalcrom.

My thanks to [personal profile] wispywillow for mentioning it last summer. In searching for that post, I see that [personal profile] furr_a_bruin mentioned it back in 2011 too, although apparently I never gave it a proper try back then. That's a shame, because it works wonders.

I still can't figure out how it works. It's not a histamine/anti-histamine kind of drug. It's a mast cell stabilizer drug. I don't know much about MCAS (mast cell activation syndrome), but it's related to that. The best analogy I can find is that NasalCrom orders these cells to "Calm down!", so they don't respond with histamine reactions when your immune system tells them that you are exposed to allergens. So, you're still allergic to stuff, but... nothing happens.

That's my experience too. Taking only NasalCrom and nothing else, I can still develop an itchy nose plus a few sneezes. What changes, though, is that my sinuses fail to explode with mucus production. I also take generic fluticasone propionate (sometimes known as Flonase), which is a steroid to reduce inflammation. It's a drug commonly used to deal with asthma, allergies, and nasal polyps like I have a long history of developing. Together, I can even leave my window open at night if I want to, and I don't have to regret it in the morning. At most, I can sometimes tell that my sinuses might be ever-so-slightly swollen or sensitive, like they're on alert because they know allergens are present, but there are no debilitating symptoms that go with it. NasalCrom does the heavy lifting, while the fluticasone softens the few remaining issues.

Together, I'm hopeful that I won't have to deal with polyps blocking my sinuses due to overactive tissues reacting to airborne allergens. If I have no more polyps, then I have no recurring sinus blockage and raging high temperatures, and with no dangerous high temps over 39.5C/103.1F, then I'll have no need for a 3rd sinus surgery. It's a wonder drug, targeted specifically at my sinus tissue. I'm certain it's better for my body than eating pills that affect my whole body, just so I can survive another few hours with strong symptoms.

mellowtigger: (calm relax)

My temperature was only 37.2C/99.0F this morning. I wore long clothes in the morning to stay warm, because I felt cool still. By afternoon, I took off the long sleeve shirt. After work, I felt well enough to finally get outside and do some gardening.

I'm pretty sure I'm developing arthritis in both feet. The pain is similar but still in the developing stage. My left knee, though. I had to stop gardening because I kept grimacing and audibly "ow"-ing whenever I had to stand up. It's a sharp pain like arthritis, but it doesn't feel quite as concentrated and pointy as arthritis. Hopefully it's just a result of being unfit, and it will heal into good shape soon.

If it ends up being arthritis, then I'll probably have to sell my house. Yuck. I can't keep up the yard without good knees. I can deal with the rest of it, even the feet, I think. Knees, though... I don't want to be so old that I can't garden. I don't want to sell my house to somebody who'll just put in a grass yard. I want all of this effort to continue keeping pollinators around.

For now... good thoughts. Rest for now, not aggravating the knee. At least until tomorrow after work, when I'll I return to the garden to remove more grass that shouldn't be there. Today, I disturbed some large flower bulbs whose sprouts hadn't yet broken the surface. Good thoughts for them too. I hope I didn't damage anything important while trying to keep my yard in fair condition for city inspectors who drive around occasionally.

It fascinates me that this whole-body arthritis flare-up seemed triggered by that pneumococcal vaccine. I went searching just now, and this Arthritis Foundation webpage recommends getting the vaccine "... or when your arthritis isn't active". What's up with that?

mellowtigger: (calm relax)

The nurse and doctor were promoting that pneumococcal vaccine, saying it didn't have the bad reactions like some people have to COVID vaccines. Yesterday was fine afterwards until late in the evening, then everything started to hurt.

More specifically, every arthritic location was hurting a lot, plus the ache in my left arm where I got the injection, plus some muscle soreness and coldness reminiscent of a flu. I was making audible groans and "ow" sounds at almost every movement, and everything hurt a little bit even when sitting or laying still. I'm feeling slightly better this morning, with the pain mainly coming from my lower back (site of the first arthritis X-ray confirmation) and for some reason my hamstrings.

Definitely not as advertised. I'm glad I get this additional recovery period before starting work tomorrow morning.

Edit 4pm: I got very little sleep last night due to the pain, but I caught up today by sleeping about 9am-1pm. The thermometer says that I have a temperature of 37.7C/99.9F right now. Still very achy like the flu. Currently mostly a headache and lower back pain, plus cold (wrapping up in blanket) due to the fever.

Edit 8pm: I did a COVID test, and it came back negative. Relevant question because I had to take my mask off at the clinic briefly to get a good oxygen saturation reading which was low at first. I'll test again in 2 days, but this seems to be just a reaction to the vaccine? Temperature currently shows as 37.8C/100.0F.

mellowtigger: (life clock)

I just walked back from a visit to my local doctor, a follow-up after getting a home blood pressure machine a few weeks ago. I like data, so I recorded a few notable blood pressure readings. It was the usual borderline issue that has persisted for years, with only 2 exceptions recorded on this home machine. The high reading was immediately after turning off "The Last Of Us", another violent episode that I couldn't stomach and had to turn away. The low reading was during my week-long staycation from work this week, not having to deal with the stress of my current job, and sleeping a lot more than usual. I suspected that this job might be "too much" for me to handle long term, but I finally have some data to back up that feeling.

eventsystolediastolepulse
today at clinic after walking there1479777
typical reading at home1459059
bad reading after interrupting stressful tv episode16710092
good reading after several days away from work
(maybe after walking up/downstairs? not sure about that heart rate)
1278179

The doctor prescribed hydrochlorothiazide. We're going to try getting the blood pressure down as a temporary measure. In addition, they are sending me to another sleep specialist, hoping to get me a sleep apnea solution that uses new technology. I don't find it documented in Dreamwidth, but I long ago was prescribed a CPAP for sleep apnea. I gave it up almost immediately because I developed a rash on my face everywhere that the mask touched my skin. I've seen ads for new contraptions that are either mini-masks or some even somehow using electrical stimulation to solve the problem. I'm excited to learn what new technology the new specialist-doctor recommends for me.

The doctor also is referring me to a different gastroenterology clinic, one where they don't use the usual drug to "put people under". It may be because of that drug that a Minnesota law newly (since about 2023, I think, although I don't know which law) requires the patient to have someone transport them to the clinic, remain at the clinic throughout the procedure, and transport the patient back home again. In the past, medical transportation services would take you there and back again. I contacted those services, but they told me they can't do it anymore under this new law, because they're not going to wait around for half a day for a single patient case. We'll see what comes of this new recommendation. I'm a few years behind on what I know needs to be done, because they always find polyps, and I've been doing them since around age 30 because of unrelated gastrointestinal issues.

This is my first long term (but hopefully short term) pharmaceutical pill. Apparently I'm now old enough for me to mooch insurance money off of the healthy young people, instead of paying more into it. I wish we could just do socialized medicine, like a civilized society would do, to make all of this process easier and cheaper on everyone. Instead, I'll be filing insurance claims and costing my coworkers more money. Can you imagine how much extra medical service we could afford if we weren't also paying for health insurance millionaires, stockholders, and denial-of-care bureaucracy?

Edit 7pm: My arm is starting to hurt finally from the pneumococcal vaccine that I got at the clinic this morning. I picked up the hydrochlorothiazide at the pharmacy this morning. The pills are very tiny. If I thought that I was peeing a little too often before, that was just practice. The doctor advised that I take the pill in the morning rather than at night, and I see why. Frequent bathroom breaks are now required. I called the neurology clinic to set up an appointment for sleep apnea discussion. I need to transfer records from long ago to this new service, so they can see my prior diagnosis and test results. Now, I need to figure out how to transport myself to that far northwest metro location. The bus service map didn't offer any routes from my house to there, so I may have to just Uber/Lyft my way there. Certainly doable.

Edit 8pm: In my haste to discuss my urination schedule, I forgot to mention that the insurance co-pay on my prescription hydrochlorothiazide was a mere US$0.36, and that figure is not a mistake. I have no idea what it actually costs to my insurance and therefore my coworkers, but that price is incredibly cheap to me at the pharmacy counter.

yes, I'm still reading

2025-Feb-26, Wednesday 06:24 pm
mellowtigger: (absurdity)

I'm still reading Dreamwidth entries, but I'm just not writing much lately. My brain has been filled with other things instead.

Like cracking a molar again. It's the same one as back in 2022, but I lost an even bigger chunk of it this time. I managed to snag a coveted emergency dental appointment on Tuesday morning, where they put a temporary cover on it. They need me to complete a regular dental exam first (in late April, the nearest available date they could offer) before deciding if this tooth is healthy enough for a crown or if it should be extracted. The dentist told me emphatically, "Keep wearing your mouth guard," because it will help protect what remains of my teeth from the grinding during my sleep. She was kind to offer a referral to have the annoying tori bone (developed due to lifelong grinding of teeth) cut out of my head, but I declined for now. It's good that's an option, and I could never afford it if I lacked health insurance, but that's a lot of physical pain that I would like to avoid as long as I can. Although... this fancy new water-plus-laser method sounds very interesting.

Plus, you know, there's everything in the news. My employer is trying to figure out how Trump breaking government services and education funding is going to impact us. The university president released this statement that skillfully avoids naming Trump or Republicans, just referring to "Washington, D.C." instead. Two days later, of course, they announce that there will be campus closures. The loss of tuition money won't affect my team for many years, if at all. The loss of research money seems a much more immediate problem for the university. They're having a discussion about that issue on Friday.

While I was at the dentist, my blood pressure would not come down to a safe level. I'll probably have to talk to my general doctor about that eventually.

I just wanted you to know that I appreciate all of you continuing to post at Dreamwidth. I'm reading your words, really I am.

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