surviving long covid and demanding change
2022-May-02, Monday 07:13 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
mellowtiggerYes, I'm now officially breaking my promise to avoid this topic. I also want to write about the aerosol factor for disease spread. But for now: Activism!
It was 2020 May, and already enough people had persistent lingering symptoms of SARS-CoV-2 infection that someone created the hashtag #LongCovid on Twitter. It's now 2 full years later with 100+ million more people suffering Long Covid symptoms, yet some doctors still haven't even heard of it!
I'm sorry. I'm afraid that history says it's up to you sufferers to demand change. I've been vocal for 2 years already, but nobody listens to me. It's a great first step that you created your own terminology, but now you need your own version of ACT UP to metaphorically blow up the social apparatus that seems determined to ignore this crisis. It's unfair, but that's what it'll take. Interrupt tv broadcasts. Interrupt political speeches. Interrupt the journalists ignoring you. Create your own logo and plaster it all over cities worldwide. Be loud.
I think your first goal should be to counteract the falsehood that SARS-CoV-2 is merely a transient infection like the flu. Only 8 Americans ever came down with SARS-CoV-1 infection back in 2003, but at least in the lab afterwards in 2004 it was very clear that the infection would be permanent. Start there. Cite the 100+ millions of people already with Long Covid. Cite the documented brain infections. Cite the syncytia formation. Cite the industries continuously losing staff due to infection. Cite the examples of infections known to persist for 230 days and more (including a rumor of 480 days known by Mayo Clinic and the University Of Wisconsin). Overwhelm the mental resistance.
Time is running out, too. HIV-1 takes many years to progress to immune system failure and the inevitable infection or cancer that finally overwhelms the body. We're now 2.5 years into this new pandemic, and the many opportunistic diseases are finally starting to emerge. I've seen the new term C-AIDS being used on Twitter. It's unclear to me just how SARS-CoV-2 damages the immune system, but it clearly is happening. It infects and destroys CD4 T cells, but it apparently performs that task at a slower rate than HIV-1. More quickly, however, it seems to task, continuously overuse, and eventually deplete the body's supply of these cells due to excessive overuse during chronic widespread infection. Meanwhile, the virus is still causing blood clots in every tissue and organ throughout the body at every recurrence of infection within the body. While 40% of infected people initially notice no symptoms at all, the damage may still be done to diverse systems like eyes, liver, kidneys, heart, intestines, and brain (and mind).
For immediate concerns, if your doctor is ignoring you, then you should check with Survivor Corps. But you need political clout. You need it fast. I feel like we're seeing the 1980s unfold all over again. I avoided seroconversion that time, and I hope I succeed this time too. I'll continue to be vocal, but you need to exercise your own collective power!
It was 2020 May, and already enough people had persistent lingering symptoms of SARS-CoV-2 infection that someone created the hashtag #LongCovid on Twitter. It's now 2 full years later with 100+ million more people suffering Long Covid symptoms, yet some doctors still haven't even heard of it!
I'm sorry. I'm afraid that history says it's up to you sufferers to demand change. I've been vocal for 2 years already, but nobody listens to me. It's a great first step that you created your own terminology, but now you need your own version of ACT UP to metaphorically blow up the social apparatus that seems determined to ignore this crisis. It's unfair, but that's what it'll take. Interrupt tv broadcasts. Interrupt political speeches. Interrupt the journalists ignoring you. Create your own logo and plaster it all over cities worldwide. Be loud.
I think your first goal should be to counteract the falsehood that SARS-CoV-2 is merely a transient infection like the flu. Only 8 Americans ever came down with SARS-CoV-1 infection back in 2003, but at least in the lab afterwards in 2004 it was very clear that the infection would be permanent. Start there. Cite the 100+ millions of people already with Long Covid. Cite the documented brain infections. Cite the syncytia formation. Cite the industries continuously losing staff due to infection. Cite the examples of infections known to persist for 230 days and more (including a rumor of 480 days known by Mayo Clinic and the University Of Wisconsin). Overwhelm the mental resistance.
Time is running out, too. HIV-1 takes many years to progress to immune system failure and the inevitable infection or cancer that finally overwhelms the body. We're now 2.5 years into this new pandemic, and the many opportunistic diseases are finally starting to emerge. I've seen the new term C-AIDS being used on Twitter. It's unclear to me just how SARS-CoV-2 damages the immune system, but it clearly is happening. It infects and destroys CD4 T cells, but it apparently performs that task at a slower rate than HIV-1. More quickly, however, it seems to task, continuously overuse, and eventually deplete the body's supply of these cells due to excessive overuse during chronic widespread infection. Meanwhile, the virus is still causing blood clots in every tissue and organ throughout the body at every recurrence of infection within the body. While 40% of infected people initially notice no symptoms at all, the damage may still be done to diverse systems like eyes, liver, kidneys, heart, intestines, and brain (and mind).
For immediate concerns, if your doctor is ignoring you, then you should check with Survivor Corps. But you need political clout. You need it fast. I feel like we're seeing the 1980s unfold all over again. I avoided seroconversion that time, and I hope I succeed this time too. I'll continue to be vocal, but you need to exercise your own collective power!
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Date: 2022-May-08, Sunday 05:09 pm (UTC)http://www.sars2.org/